Addalyn Clements has found the person who will save her life.
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With her health failing fast and just months to live, Addy has received a final reprieve with not one but two German citizens proving to be a match for a life-saving bone marrow transplant.
The Mercury told the story of Addy, 5, and her search for a donor at the end of March.
But, despite hundreds of Hunter residents coming forward to become blood and bone marrow donors, there were no suitable match for the little Tenambit girl.
So the search went worldwide and this provided the ultimate outcome.
“Even though the search did take a bit longer than hoped, we got two donors and that’s just wonderful,” Addy’s mother Rachael Clements said.
With initial testing complete, it’s now up to the potential donors to agree on a date for the procedure.
It is anticipated the transplant will take place within the next six to eight weeks.
“Up until two weeks before the transplant, the donors can back out, so that’s why it’s so great to have two options because at least we have a back up,” Mrs Clements said.
The news has also come at a crucial time in Addy’s life with the little girl requiring more and more blood and platelet transfusions.
“Addy’s not producing many white cells which means her immunity is quite low, so I don’t know how much longer we’d be able to keep going on this path without this transplant,” she said.
“But we have light at the end of the tunnel.”
In the past 18 months, Addy has been diagnosed with two rare cancers.
The sad reality is if she doesn’t receive a bone marrow transplant within the next six months she will most certainly die.
Addy was diagnosed with T-cell lymphoma in 2013 after she presented with a persistent cough.
And she has since been diagnosed with Fanconi’s anaemia – a rare disease resulting in decreased production of all types of blood cells.
“I do have mixed emotions about all this because the same day we found out about the donor, we found out that one of our little friends also needs a transplant,” Mrs Clements said.
“That’s why it’s just so important to keep pushing for more donors. The response to this campaign has been amazing, but this isn’t just about Addy, it’s about everyone who will ever need a bone marrow transplant.
“This will be Addy’s legacy.”
Friends of the Clements’ family have also established a Facebook page to help raise money for Addalyn.
For more information visit Unicorns for Addy on Facebook.