The Mercury has previously reported on the plight of Tayissa Howe and her family. Tayissa has a rare form of infant epilepsy that can cause her to stop breathing. 

Purple Day, held on March 26, raises awareness for epilepsy.

It was started by a young girl who, like Tayissa, has epilepsy.

Purple Day aims to dispel myths about the condition and help those with epilepsy realise they are not alone in their journey.

Tayissa’s mother Amy Howe said it was sometimes a struggle to explain her daughter’s condition to others.

“We found it hard with a few people because Tay looks so normal,” she said.

“Until she has a fit.

“Not many people are aware of it, especially in infants.”

Tayissa’s story touched countless people across the community, including McKeachies Corner co-owners Regina Harvey and Georgina Grine.

They organised a benefit night to help the family pay medical and transport costs.

Mrs Howe said it was amazing that people with no personal connection to her daughter could be so generous.

“The funds will help with medical expenses,” she said.

“It’ll pay for food, accomodation, bills when we go to Westmead [for her treatment].”

She encouraged the wider community to come to the benefit night, which will take place on April 2 at the Bradford Hotel in Rutherford.

Mrs Howe also said she hoped people in Maitland would show support for Purple Day

“I’ll paint my nails purple, her fundraiser will have a purple theme, her room is painted purple,” she said.

“We made it her colour.”

Tayissa was recently chosen as the face of the Bandaged Bear Appeal. 

More information on the fundraiser for Tayissa Howe can be found by calling 4932 1842 or on the McKeachie’s Corner facebook page.

More information on Purple Day can be found at purpleday.org.